Van Hollen, Murphy, Cassidy Introduce Laws to Enhance Neurological Well being Analysis

September 21, 2022

At the moment, U.S. Senators Chris Van Hollen (D-Md.), Chris Murphy (D-Conn.), and Invoice Cassidy, M.D., (R-La.) launched laws to reauthorize the Facilities for Illness Management and Prevention’s (CDC) Nationwide Neurological Situations Surveillance System (NNCSS) program, which collects information which collects privacy-protected information on neurological situations to tell analysis and assist advance higher remedies and cures.

Particularly, the laws would reauthorize the NNCSS for one more 5 years and enhance funding to $10 million beginning in FY23 and as much as $20 million by FY26. Reauthorization would enable this system to finish its present work on A number of Sclerosis and Parkinson’s and broaden to different neurological situations.

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“For Americans living with neurological conditions, like Parkinson’s and MS, good data holds the key to advancing innovative treatments and cures. That’s why it’s crucial that we fully fund the NNCSS program for another five years to expand data collection and research capabilities. This legislation will help millions of patients – and families – who are impacted by these conditions each year, as we seek to strengthen our responses to and treatments available for neurological conditions,” mentioned Senator Van Hollen. 

“The NNCSS is a critical program that helps us better understand neurological conditions like Multiple Sclerosis and Parkinson’s Disease, which each impact more than a million Americans and their families. Their research is key to developing more effective treatments and ultimately finding a cure for these horrific diseases. We must continue to support their lifesaving work,” mentioned Senator Murphy.

“Hope for cures comes through advances in knowledge. Let’s create that hope,” mentioned Senator Cassidy. “This bill supports research into treatments and cures while protecting patients’ privacy.”

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“Curing and preventing Parkinson’s means providing researchers with the most robust information about how the disease originates and what potential triggers exist here in the United States. The National Neurological Conditions Surveillance System is a world-class engine that is integral to curing Parkinson’s and other neurological conditions,” mentioned Ted Thompson, JD, senior vice chairman of The Michael J. Fox Basis for Parkinson’s Analysis. “On behalf of the Parkinson’s neighborhood, we name on Congress to reauthorize the NNCSS in order that the world’s greatest and brightest can have entry to the info and knowledge they should treatment and, sooner or later, stop Parkinson’s.  Parkinson’s prices america greater than $52 billion yearly, and that may develop to not less than $80 billion within the subsequent 15 years. Investing $10 million in FY 2023 within the NNCSS to have the ability to ultimately offset billions of {dollars} in the fee for care is a brilliant funding I hope Congress will assist.” 

“Brain health is crucial to individual health. A key way policymakers can improve brain health is through gathering more data about the incidence and prevalence of neurologic disease,” mentioned Orly Avitzur, MD, MBA, FAAN, President of the American Academy of Neurology. “The National Neurological Conditions Surveillance System has begun to provide critical insights into Parkinson’s disease and multiple sclerosis.  This legislation will ensure this important project continues and has the resources to expand to more neurologic conditions over time. Neurologic diseases cost the United States more than $600 billion each year – we need investments like the NNCSS to provide essential data to researchers to help improve brain health.”

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“With a new study identifying the annual economic burden of multiple sclerosis (MS) at $85.4 billion, it is more important than ever to provide researchers with accurate and up-to-date data to lead to answers and a cure for MS,” mentioned Bari Talente, govt vice chairman of advocacy and healthcare entry on the Nationwide MS Society. “The National Neurological Conditions Surveillance System is positioned to provide crucial information to researchers working to end MS and other neurological diseases. MS activists urge Congress to support the reauthorization and $10 million in federal funding for FY23 of the NNCSS.”

This laws is endorsed by the American Academy of Neurology, the Nationwide A number of Sclerosis Society, and the Michael J. Fox Basis.

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Textual content of the invoice is obtainable here.



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